Campers & Families December 2, 2023 - 12:30pm - 4:00pm 22q Deletion Syndrome Achondroplasia Adrenal Insufficiency Alport Syndrome Apert Syndrome Aplastic Anemia Ataxia Cerebral Palsy Common variable immunodeficiency (CVID) Congenital Adrenal Hyperplasia Craniofacial Differences Crohn's Disease Ulcerative Colitis Cystic Fibrosis Dermatomyositis Diamond-Blackfan Anemia Ehlers Danlos Syndrome Epilepsy-VNS Epilepsy Factor Deficiency in Females Fibromyalgia General Nephrology-Decreased Kidney Function Hemodialysis Hemophilia Intestinal Pseudo Obstruction Juvenile Arthritis Kabuki Syndrome Kidney Transplant Limb Loss and Deficiencies Liver Disease (non-communicable) Liver Transplant Mitochondrial Disease Mixed Connective Tissue Disease MPS Muscular Dystrophy Myopathies Neuromuscular Diseases Noonan Syndrome Paraplegia/Hemiplegia Peritoneal Dialysis (PD) PKU (Phenylketonuria) Primary Immunodeficiency Disease Pulmonary Hypertension Quadriplegia Rare Genetic Conditions Rheumatologic Conditions Scleroderma Short Gut Syndrome Siblings of a Child with Eligible Medical Condition Skeletal Dysplasia (Dwarfism) Small Bowel Transplants Spina Bifida Spinal Muscular Atrophy Spondyloepiphyseal Dysplasia Systemic Lupus Erythematosus (SLE) Thalassemia Total Parenteral Nutrition/Gastrointestinal Tube Feeding Ulcerative Colitis Uveitis Ventilator Dependent Wegener's Granulomatosis 15 Q 24 Micro-deletion Syndrome Adrenoleukodystrophy (ALD) Blood Dyscrasia Eosinophilic esophagitis (EoE) Hemophilia with Inhibitors Hemophilia/von Willebrand Disease Intractable Epilepsy Seizure Disorder Kidney Disease and Transplant NBS Adrenoleukodystrophy Pediatric Pancreatitis Rare Genetic Platelet Disorders SCID Sibling Holiday Gathering Lake Hughes, CA Read more
Campers & Families July 16, 2023 - July 21, 2023 Hemophilia Hemophilia with Inhibitors Hemophilia/von Willebrand Disease Diamond-Blackfan Anemia Aplastic Anemia Blood Dyscrasia Thalassemia Factor Deficiency in Females Rare Genetic Platelet Disorders Summer Session: Hemophilia/vWD & Thalassemia Volunteer Arrival on July 15 / Camper Application Deadline: July 6, 2023 Camper Application Deadline: July 6 Read more
