Campers & Families July 12, 2026 - July 16, 2026 Amytrophic Lateral Sclerosis (ALS) Charcot Marie Tooth Disease Friedreich’s Ataxia Giant Axonal Neuropathy (GAN) Muscular Dystrophy Myasthenic Syndromes Myopathies Myotonic Dystrophy Spinal Muscular Atrophy Summer Session: Muscular Dystrophy & Leadership Camper Application Deadline: June 12, 2026 Volunteer Arrival: July 11, 2026 We are thrilled to welcome campers who have Muscular Dystrophy as well as Leadership Campers (ages 17 & 18) to this five day summer session. For information on Leadership program please click here: Leadership Program – The Painted Turtle Teacher Questionnaire Bleeding Disorder Form Central Venous Catheter Form Immunization Requirements Physician and Activity Clearance Form TPN Form Respiratory Clearance Form Read more
Campers & Families December 5, 2026 - 12:30pm - 4:00pm 15 Q 24 Micro-deletion Syndrome 22q Deletion Syndrome Adrenoleukodystrophy (ALD) Alport Syndrome Amytrophic Lateral Sclerosis (ALS) Angelman Syndrome Apert Syndrome Aplastic Anemia Ataxia Beal’s Syndrome Cerebral Palsy Charcot Marie Tooth Disease CHARGE Syndrome Chronic Intestinal Pseudo Obstruction Cleft lip and/or palate Common variable immunodeficiency (CVID) Craniofacial Conditions Craniosynostosis Crohn's Disease Crouzon Syndrome Cystic Fibrosis Diamond-Blackfan Anemia Eosinophilic Esophagitis (EOE) Epilepsy Epilepsy-VNS Factor Deficiency in Females Fanconi Anemia Friedreich’s Ataxia General Nephrology - Decreased Kidney Function Giant Axonal Neuropathy (GAN) Hemangiomas Hemodialysis Hemophilia Hemophilia with Inhibitors Hemophilia/von Willebrand Disease Hydrocephalus Intractable Epilepsy Kabuki Syndrome MEPAN Syndrome Kidney Disease and Transplant Limb Loss and Deficiencies Liver Disease - Noncommunicable Liver Transplant Microcephaly Moebius Syndrome Muscular Dystrophy Myasthenic Syndromes Myopathies Myotonic Dystrophy Neuromuscular Conditions Noonan Syndrome Paraplegia/Hemiplegia Peritoneal Dialysis (PD) Pierre Robin Sequence PKU (Phenylketonuria) Primary Immunodeficiency Diseases (PIDD) Pulmonary Hypertension Rare Genetic Conditions Rare Genetic Platelet Disorders Severe combined immunodeficiency (SCID) Seizure Disorder Short Gut Syndrome Small Bowel Transplant Smith Magenis Syndrome Spina Bifida Spinal Muscular Atrophy Stickler Syndrome Sturge Weber Syndrome Thalassemia TPN Dependent Total Parenteral Nutrition/Gastrointestinal Tube Feeding Ulcerative Colitis VACTERL Velo-Cardio-Facial Syndrome Weidemann-Steiner Syndrome Weiss-Kruszka Syndrome Arthrogryposis Intestinal Pseudo Obstruction Kidney Disease and Transplant Kidney Transplant Mitochondrial Disease Urea Cycle Disorder Holiday Gathering Lake Hughes, CA Read more