Campers & Families July 31, 2026 - August 3, 2026 Arthrogryposis Ataxia Cerebral Palsy Limb Loss and Deficiencies Spina Bifida Neuromuscular Conditions Paraplegia/Hemiplegia Summer Family Weekend: Neuromuscular Camper Application Deadline: July 3, 2026 Volunteer Arrival July 31, 2026 Teacher Questionnaire Bleeding Disorder Form Central Venous Catheter Form Immunization Requirements Physician and Activity Clearance Form Respiratory Clearance Form TPN Form Read more
Campers & Families December 5, 2026 - 12:30pm - 4:00pm 15 Q 24 Micro-deletion Syndrome 22q Deletion Syndrome Adrenoleukodystrophy (ALD) Alport Syndrome Amytrophic Lateral Sclerosis (ALS) Angelman Syndrome Apert Syndrome Aplastic Anemia Ataxia Beal’s Syndrome Cerebral Palsy Charcot Marie Tooth Disease CHARGE Syndrome Chronic Intestinal Pseudo Obstruction Cleft lip and/or palate Common variable immunodeficiency (CVID) Craniofacial Conditions Craniosynostosis Crohn's Disease Crouzon Syndrome Cystic Fibrosis Diamond-Blackfan Anemia Eosinophilic Esophagitis (EOE) Epilepsy Epilepsy-VNS Factor Deficiency in Females Fanconi Anemia Friedreich’s Ataxia General Nephrology - Decreased Kidney Function Giant Axonal Neuropathy (GAN) Hemangiomas Hemodialysis Hemophilia Hemophilia with Inhibitors Hemophilia/von Willebrand Disease Hydrocephalus Intractable Epilepsy Kabuki Syndrome MEPAN Syndrome Kidney Disease and Transplant Limb Loss and Deficiencies Liver Disease - Noncommunicable Liver Transplant Microcephaly Moebius Syndrome Muscular Dystrophy Myasthenic Syndromes Myopathies Myotonic Dystrophy Neuromuscular Conditions Noonan Syndrome Paraplegia/Hemiplegia Peritoneal Dialysis (PD) Pierre Robin Sequence PKU (Phenylketonuria) Primary Immunodeficiency Diseases (PIDD) Pulmonary Hypertension Rare Genetic Conditions Rare Genetic Platelet Disorders Severe combined immunodeficiency (SCID) Seizure Disorder Short Gut Syndrome Small Bowel Transplant Smith Magenis Syndrome Spina Bifida Spinal Muscular Atrophy Stickler Syndrome Sturge Weber Syndrome Thalassemia TPN Dependent Total Parenteral Nutrition/Gastrointestinal Tube Feeding Ulcerative Colitis VACTERL Velo-Cardio-Facial Syndrome Weidemann-Steiner Syndrome Weiss-Kruszka Syndrome Arthrogryposis Intestinal Pseudo Obstruction Kidney Disease and Transplant Kidney Transplant Mitochondrial Disease Urea Cycle Disorder Holiday Gathering Lake Hughes, CA Read more
