Campers & Families December 2, 2023 - 12:30pm - 4:00pm 22q Deletion Syndrome Achondroplasia Adrenal Insufficiency Alport Syndrome Apert Syndrome Aplastic Anemia Ataxia Cerebral Palsy Common variable immunodeficiency (CVID) Congenital Adrenal Hyperplasia Craniofacial Differences Crohn's Disease Ulcerative Colitis Cystic Fibrosis Dermatomyositis Diamond-Blackfan Anemia Ehlers Danlos Syndrome Epilepsy-VNS Epilepsy Factor Deficiency in Females Fibromyalgia General Nephrology-Decreased Kidney Function Hemodialysis Hemophilia Intestinal Pseudo Obstruction Juvenile Arthritis Kabuki Syndrome Kidney Transplant Limb Loss and Deficiencies Liver Disease (non-communicable) Liver Transplant Mitochondrial Disease Mixed Connective Tissue Disease MPS Muscular Dystrophy Myopathies Neuromuscular Diseases Noonan Syndrome Paraplegia/Hemiplegia Peritoneal Dialysis (PD) PKU (Phenylketonuria) Primary Immunodeficiency Disease Pulmonary Hypertension Quadriplegia Rare Genetic Conditions Rheumatologic Conditions Scleroderma Short Gut Syndrome Siblings of a Child with Eligible Medical Condition Skeletal Dysplasia (Dwarfism) Small Bowel Transplants Spina Bifida Spinal Muscular Atrophy Spondyloepiphyseal Dysplasia Systemic Lupus Erythematosus (SLE) Thalassemia Total Parenteral Nutrition/Gastrointestinal Tube Feeding Ulcerative Colitis Uveitis Ventilator Dependent Wegener's Granulomatosis 15 Q 24 Micro-deletion Syndrome Adrenoleukodystrophy (ALD) Blood Dyscrasia Eosinophilic esophagitis (EoE) Hemophilia with Inhibitors Hemophilia/von Willebrand Disease Intractable Epilepsy Seizure Disorder Kidney Disease and Transplant NBS Adrenoleukodystrophy Pediatric Pancreatitis Rare Genetic Platelet Disorders SCID Sibling Holiday Gathering Lake Hughes, CA Read more
Campers & Families November 17, 2023 - November 19, 2023 Adrenal Insufficiency Common variable immunodeficiency (CVID) Congenital Adrenal Hyperplasia Crohn's Disease Epilepsy General Nephrology-Decreased Kidney Function Kidney Disease and Transplant Kidney Transplant Liver Disease (non-communicable) Liver Transplant Peritoneal Dialysis (PD) Primary Immunodeficiency Disease Ulcerative Colitis Short Gut Syndrome Small Bowel Transplants Total Parenteral Nutrition/Gastrointestinal Tube Feeding 15 Q 24 Micro-deletion Syndrome 22q Deletion Syndrome Adrenoleukodystrophy (ALD) Alport Syndrome Apert Syndrome Ataxia Cerebral Palsy Craniofacial Differences Eosinophilic esophagitis (EoE) Epilepsy-VNS Hemodialysis Intestinal Pseudo Obstruction Intractable Epilepsy Seizure Disorder Kabuki Syndrome Limb Loss and Deficiencies Mitochondrial Disease NBS Adrenoleukodystrophy Neuromuscular Diseases Noonan Syndrome Paraplegia/Hemiplegia PKU (Phenylketonuria) Pulmonary Hypertension Rare Genetic Conditions SCID Spina Bifida Campamento para Familias Application Deadline: November 7, 2023 Read more
Campers & Families July 7, 2023 - July 11, 2023 15 Q 24 Micro-deletion Syndrome 22q Deletion Syndrome Alport Syndrome Apert Syndrome Ataxia Cerebral Palsy Craniofacial Differences Epilepsy Epilepsy-VNS Intractable Epilepsy Seizure Disorder Kabuki Syndrome Limb Loss and Deficiencies Myopathies Neuromuscular Diseases PKU (Phenylketonuria) Rare Genetic Conditions Spina Bifida Summer Session: Special Diagnoses Volunteer Arrival on July 6 / Camper Application Deadline: June 27, 2023 Camper Application Deadline: June 27, 2023 Read more
